How Connections Have Empowered Me to Educate, Advocate, and Lead
by Ellerie Hamner
This is my story of growing from an awkward teen into an empowered 20-year-old adult with epilepsy who refuses to let a diagnosis define or limit me.
I was diagnosed with epilepsy at six. I still learned to ride a bike and swim, and doctors hoped I would outgrow my absence seizures with puberty. Six years later, after traveling the world and living in Hawaii, puberty arrived—but my seizures worsened. My world would briefly go quiet, time slipping away. Life was full in between: paddling with an outrigger team, riding horses, and spending time in nature. Still, I felt betrayed by my body and helpless.
We tried what was available—CBD oils and supplements—which helped with anxiety but weren’t a cure. We sought specialists, but the pandemic delayed care. Then in 2021, something changed: I could remember what I’d been saying before a seizure and rejoin conversations seamlessly. That moment gave me hope.
Eventually, I connected with a neurologist who introduced me to JoshProvides, an epilepsy support group. Even over Zoom, it made me feel less alone and more empowered. I began educating friends and classmates about what my seizures look like and how to help.
Through JoshProvides, my family and I connected with others who supported my dream of having a service dog. I also joined All Friends Network, an in-person social group where I found joy, inclusion, and connection. I love introducing others to these communities and seeing friendships grow.
My friends and coworkers know how to support me during seizures. They stay close, give me space, make sure I’m hydrated, and help me stay safe until I’m fully aware again. Having people who understand makes all the difference.
In 2025, I still have seizures—but they don’t stop me. I use public transportation and accessible services to live independently. I lead by educating others and speaking up about my needs. When friends see a seizure for the first time and learn how to help, trust deepens and bonds grow.
Another source of support is my service-dog-in-training, Luna. She gives me confidence and helps start conversations. People notice her vest, ask questions, and those moments become opportunities to educate. Luna stays by my side during seizures and is learning to alert me. I’m grateful to those who paved the way for service-dog access—it allows me to navigate the world more freely.
Recently, I was invited to bring Luna on a holiday trolley tour with JoshProvides. Being welcomed fully—dog included—reminded me how powerful true inclusion is.
A friend once told me, “You might stand out, and people may underestimate you—but we are all human.” That reminder stays with me.
I’ve worked in a café, now work in a church nursery, and recently landed a mall job entirely on my own. I focus on what I can do, not what might hold me back.
Every challenge has taught me to stand tall, speak up, and move forward with intention. True strength is choosing to keep going—and to lead with confidence.
Ellerie and her family are members of the JoshProvides Epilepsy Support Group
