Joshprovides has been the light at the end of a dark tunnel. I had searched for many months and long hour, looking for funding trying to get my son a much needed service dog. My son suffers from a seizure disorder and brain damage from birth. Due to the increasing severity of his disability I was no longer able to work and trying to support our seven children on now one income. Four of our children have different disabilities. Getting what our son needed was beyond our reach until we came across Joshprovides. Joshprovides have been very helpful and understanding. We feel like we have been given back hope again.
Gabriel
Lillianna was diagnosed with epilepsy as an infant, fortunately we were able to control them with a low dose of medication (trileptal).  However, in the past three months she has begun to have clonic tonic seizures while she is sleeping and focal seizures throughout the day.  I am currently working with her doctors to try to get them subdued; we have increased her trileptal to the maximum dose; however, she is still having focal seizures everyday.  Lillianna's epilepsy is due to her diagnosis of having a duplicated chromosome that cause epilepsy among many other things. As her mother, I am in great fear that she will keep continue to have tonic clonic seizures throughout the night and I will not hear her.  After reading the testimonies of many people who have found great comfort and confidence with the Emfit monitor; I feel that this would be extremely helpful and could possibly save her life.  Unfortunately,  I do not have the income or financial resources to afford this monitor.  When I applied for assistance through joshprovides.org, I did not expect such a quick response.  The sense of urgency and compassion was overwhelmingly joyful, just to say the least.  I am forever grateful for your assistance! Thank you, Samantha, Andrew, & Lillianna
Lillianna
Lillianna
Hello, I am extremely grateful to The Josh Provides Foundation for supporting my daughter Shanon. Shanon was two and 112 half when she was diagnosed with Autism. She has always worked hard to do what came easier for others such as learning to talk, read and tie her shoes. At the age of 11 112 Shanon was diagnosed with a seizure disorders and was placed on Trileptal. The Trileptal worked well, but it had disabling side effects. Shanon would suffer from slurred speech, dizziness and inability to walk when initially taking her medication. The side effects would last up to an hour or more and she was unable to function until the effects passed. I was forced to give her the medication right before bed and then again at 4:30 am so that she would sleep through the side effects of taking the Trileptal. However, even with that on some days, she awoke dizzy and sluggish. Plus, giving her the medication so early also allowed for break through seizure activity in the evening. After a year of trying to balance dosages and manage the side effects, her neurologist provided us with samples of Oxtellar XR (the extended version of Trileptal). Oxtellar XR eliminated the side effects and she no longer experienced seizures into the late afternoon. The neurologist acquisitioned our insurance company. The insurance company stated they would cover the Oxtellar XR, but we had to meet a $1 500 deductible first and the Oxtellar XR cost $1295.00 for one month supply. We prayed for help and our prayers were answered by The Josh Provides Foundation. They were able to provide support, so Shanon could get her first month supply of Oxtellar XR which helped us nearly meet are deductible. They made it possible for Shanon to get the appropriate medication to treat her seizure disorder and improved her quality of life.
Shanon Rhodenbech Picture
Shanon
I can’t begin to tell you how grateful I am for the effort and support you provided for me and my service dog Keegan. In 2008 I was diagnosed with Juvenile Myclonic Epilepsy and it was a huge life style change. Dealing with this disorder made me realize how much of a burden it can become on others to always feel the need to “take care” of me, so to speak. I grew up living a very independent life where I’d rather do things myself instead of having to depend on others. Especially being in college, depending on other people can be tricky and I never knew whose hands I could be putting my life in. After having multiple seizures a day while in my dorm leading to an enormous amount of concussions which effected my study routine, I realized I needed something else other than having someone check up on me every hour or sleep over in my room. So I decided to invest in a service dog. Being a college student, funds were always very tight even while working 2 jobs. But I realized that this dog can potentially save my life and being in a financial pinch will be worth it in the end. After signing up with the trainer to receive Keegan, someone had recommended I get in contact with JoshProvides to help elevate some of the financial burden. I reached out to Mr.Chapnick and he was SO helpful and very responsive to any questions I had regarding the grant process. After submitting my application, it was within 24 hours I had been approved and I broke down in tears. I was stressing so much over the cost of Keegan that I wasn’t fully taking care of myself and worrying so much about how I’m going to get by each month with my bills. JoshProvides gave me a huge sense of relief and so great to work with. Thank you from the bottom of my heart for all that you have done for me and the rest of the epilepsy community. I can finally feel at peace with an awesome dog that can save my life.
Taylor
Dear Mr. Chapnick & JoshProvides, Thank you so much for the grant to help us pay for our new seizure response dog, Goldie, for our daughter, Helen. Goldie is already changing our lives for the better. Thank you for all the tremendous work you do to help our epilepsy community.  I admire your strength and dedication.
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Amy, Helen, Chris, Ben & Goldie
I cannot begin to thank JoshProvides for the peace of mind the SAMi-3 monitor will provide to me in monitoring my daughter’s night seizures.  My daughter Sydney has both Epilepsy and Sensory Processing Disorder.  The aspect of “missing” a seizure is a daily stressor for me, and being a widow who has two jobs, the cost of the monitor was a bit limiting.  JoshProvides came through and gave me the peace of mind that I so badly needed.  The thought that I would miss a seizure during the night, and have it cause an adverse effect for my child is an emotionally crippling scenario.  I am so grateful to Bruce Chapnick with JoshProvides and Cynthia Anderson at HiPass Design, LLC for the speed in which my request was processed.  Sydney was approved for the SAMi-3 monitor within two weeks and everyone I have dealt with has been amazing, and kept me informed throughout the process. Thank you again for all that you do for those fighting Epilepsy,
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Jennifer (Sydney’s Mom)
Jackson was born on June 4, 2014 with a port wine stain on the left side of his face. Only 1 in 5 thousand babies are born with the stain on their face and 1 in 30 thousand have the full syndrome. The full syndrome (Sturge-Weber) causes seizures, neurological damage and glaucoma. When Jackson was 2 months old he had a trabeculotomy surgery to try and release the pressure in his left eye. The surgery worked for 3 months before they had to go back in to place a Ahmed Shunt in his left eye due to his glaucoma and pressure increasing. Jackson is now wearing glasses and his eye seems to be doing much better. Jackson is also having laser treatments to lighten the port wine stain. At 3 months of age Jackson had an EEG and MRI and everything came back fine. Recently, we visited a neurologist in Baltimore at the Kennedy Krieger Institute who ordered Jackson's 2nd EEG. The EEG showed low brain activity on the left side which makes Jackson a candidate for seizures. The neurologist prescribed medication for Jackson if he were to have a seizure longer than 3 minutes. Jackson's next scan is an MRI, MRV and MRA to determine how much of the brain that has been affected and exactly what part.
Due to Jackson's medical condition and the many doctor visits in and out of town, I had to quit work to stay home with him. With me being at home with Jackson everyday it is easy during the day for me to detect a seizure. The problem comes during the night when we have no way to know if he is having a seizure or not. The neurologist recommended an EMFIT monitor, but insurance did not cover it. Jackson's doctor and nurses in Baltimore suggested we contact JoshProvides to see if they could provide us with a monitor. After contacting Mr. Chapnick, within 2 weeks we had an approval for the monitor. The monitor was shipped out and we received it within 2 days. Mr. Chapnick and his team have been a wonderful group of people to work with. They have provided us with a great piece of mind in monitoring Jackson's sleeping at night. Thank you so much for everything you have done for our family to make our situation easier to deal with.
 
Jackson Kyser Family
Ashley, Jason and Jackson
I can't begin to thank the Josh Provides family enough for the peace of mind they have made possible for me. My son was born in July, 2013. After a healthy pregnancy and full term delivery, the doctors found tumors in his heart. He was transferred to the NICU where he had an MRI that revealed tubers in his brain and ultimately diagnosed him with Tuberous Sclerosis Complex. TSC is a genetic disease that causes benign tumors to grow on all the major organs. It is strongly associated with a particularly severe type of seizure, called Infantile Spasms. As we were told to expect, one week before Owen turned 6 months, he had his first Infantile Spasms. My heart broke. Today, we are at 1 year seizure free on his medications, a status I was too fearful to hope for. With that joy comes the knowledge that he will likely soon be weaned from the medication, and the absolute fear that he will develop new seizures. I have been looking for months for a seizure detection device that will work for my son. He has never had a tonic clonic, so many of the existing monitors will not help us. Because of the new technology, there is a new watch coming out that continually monitors biofeedback rhythms and sends alerts at changes. Josh Provides approved us for the purchase of two watches, allowing me to have immediate notice of any seizure activity. There are no words to describe the gratitude I feel for this generous gift.
Owen Gorham Picture
Nikki
We are writing to share what a positive and life changing experience we have had with JoshProvides. Our 12 year old, Mickey, who has multiple seizure types and global developmental delays, does not have seizures that are controlled by medications. Even after trying over 10 different types! He has also tried a modified Atkins diet for over a year with no success and failed to be a surgery candidate. As a family we have been woken up in the middle of the night to find him having a seizure that requires emergency medication to stop it. As you can imagine, the lack of sleep we experience is an added stress and makes for a poor quality of life when seizures tend to cluster over several days. The fear and anxiety we feel regarding his safety at night is unexplainable. We had searched for sometime to find a seizure detection device that might help us to be alert when he needs us. The Emfit was a great choice but was very expensive. After trying for a year to get our insurance to fund it, with no success, we heard about JoshProvides. Within one week we had an approval and the equipment was sent out right away. We are so thankful to finally have a safe and truly restful nights sleep!
Michael Picture
Kelli and Mickey
Cierra was born at 36 weeks from a 50% placenta abruption having to stay in NICU for three and half weeks. Due from the lack of oxygen at birth she was diagnosed with Infantitle Cerebral Palsy and Severe Brain Damage, Failure to thrive in childhood, development delay, microcephaly and numerous other diagnoses. At about 2 weeks old Cierra had a seizure that lasted for about 2 hours. The doctors told me that she would be lucky if she made it to 3 months old and she is now 11 years old; praise god!!! Cierra is a silent aspirator; so she is strictly G-Tube feed. She has under gone a list of surgeries from deformity of Acquired hip nec, with CP bilital hip dislocation this was to put her hips in the sockets because the were dislocated about 2 inches, they also at this time did lengthening of the muscles, lengthening of the hamstrings and tendons, she just recently in April 2014 under went a Spinal Fusion, and had to re-have in September and December of 2014 due to the hardware being bad. Although Cierra has tried many medications nothing seems to help her other than making her extremely sleepy, she has never really been able to control the seizures and we really never know what we are looking for because they are always different they are never the same. They have done EEG and MRI’s to determine where Cierra’s seizures are coming from but so far no luck, we have even been told by doctors that we will probably never find out where they are coming from and will probably never become seizure free that out only hope is Cannabis Oil. So after hearing the news that we would never become seizure free I started researching about the Sami Sleep Activity Monitor and determined that due to the amount that it cost I would never be able to afford one for Cierra. I just happened to run into a friend at CHOA and she was telling about the same device that she had just got for her daughter and about JoshProvides Epilepsy Assistance Foundation (joshprovides.org).  So I go home and I look up the information and that is were I find out that all I had to do was apply to see if I were able to get Cierra help for this activity monitor. I sent and email and finally got all paper work completed by the doctor and received an email back that we were approved. What exciting news for us.  Bruce and his team were so nice and provided me with email response quickly on the process from start to finish. This means the world to me to know that I can hopefully have some restful nights sleep and not have to get up and down going in to check on Cierra. JoshProvides has given me peace with knowing that they have been able to help me receive the Sami Activity Monitor that I needed for Cierra. Now we wait for our Monitor so that we can catch these seizures and have evidence for the doctors to determine what Cierra’s next step is. Thank you so much for everything that you have done for my family…. May God bless you for everything that you do!!
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Melisa (Cierra’s mom) and Cierra
Sammy’s parents believe he began having absence seizures in his early childhood, but it couldn’t be ruled out as an Autism zone-out. It wasn’t until he was eight years old that Sammy had his first tonic-clonic seizure. It would be a month before another seizure would strike, however, they came hard and fast after that. By mid-June 2014, Sammy had been transported by EMS four times and hospitalized twice. He was taking multiple anti-seizure medications, having found to be allergic to two of them. Not only was Sammy’s mom, Andrea, tending to his needs, she was also actively treating for rhabdomyosarcoma, a rare connective tissue cancer. But the family worked together with friends, family and community members to raise funds, all while dealing with hospitalizations for two of four family members. Andrea and her husband, Eric, had decided to work with Palm City-based Canines 4 Hope. Andrea then reached out to the Chelsea Hutchinson Foundation. It was Julie that helped Andrea connect with the Chapnicks. Raising funds for a service dog is a challenge that many parents feel overwhelmed by. When Bruce shared with Andrea JoshProvides was willing to help, this brought a great relief to everyone. Sybil is an American yellow Labrador who was born December 25, 2013 in St. James, MO. She came to Florida in October 2014 and began her training. Andrea sent t-shirts worn by Sammy, as well as washcloths she had wiped Sammy down with after a seizure. This was to aide trainers train Sybil in knowing Sammy ahead of time. Sybil came home on March 6, 2015 bringing a calm over the entire family.  Sammy and Sybil have trained together in public, at home, and will begin training at school soon. They are a perfect pair and love each other already. Andrea and Sammy
Sammy Seratti and Sybil Picture
Sammy
You have truly Blessed our family in a way that no one could possibly understand. Kyler was born with Preventricular Nodular heterotpia and as a result developed Epilepsy and Autism. Every 5 days Kyler goes status epilepticus, and every day he has numerous absence and drop attack seizures. We have faced injury many times from seizures because we couldnt break his fall or help him quick enough. With the help of Josh Provides we are able to get Kyler a Service Dog who he calls his "Superhero Doggie" and we are all so excited to bring him home. Kyler has faced seizures during school and on the school bus with his Superhero Doggie he will have someone right there by his side to give off warning and help quicker than his teachers and bus driver can, and he will have the comforting friend by his side through it all. We can never thank you enough for all you have done for us, or for all the support you have given us. We are looking forward to writing you again once we get Copper the Superhero Doggie home.
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Julie
Dear Bruce and the rest of the staff from JoshProvides. I am a seventeen year old boy from Florida living with epilepsy for the last six years. We thank you for the generous grant that you have provided to me and my family in our travels to The Cleveland Clinic at the end of the summer of 2014. The financial support afforded along with your connections with The Cleveland Clinic gave me the opportunity to have an evaluation from a 7 TESLA MRI scanner, one of the most powerful machines available. The information we received through your grant has been invaluable to my family and me.
Jacob
Jacob
Bruce, Words cannot express my gratitude for the financial assistance that was given to me by the Josh Provides foundation for an EMFIT seizure monitor for my daughter Victoria (age 6). Out of all the foundations I reached out to, Josh Provides is the only one that responded to my outcry for help! Since receiving the monitor, Victoria has been sleeping in her on room at night and has gained a new lease on her independence (she tells me she's a "big girl now")!  The accuracy of the monitor is impeccable! Since Victoria began having seizures at age 2, this is the is the first time she's slept apart from me in our house and I can rest at ease now knowing that I will be alerted when she has a seizure. This monitor and your foundation have been a "MIRACLE" to my family, and I want to say THANK YOU from the bottom of my heart!!!!
Tomeka
Tomikia
Dear Bruce and All at JoshProvides No words can say it all. But “THANK-YOU”. I have been sleeping in my room again. The EMFIT Monitor has gone off and David was having a seizure and I got to him. To myself, I say “Thank-you” every time. I just wanted to write and thank-you again for your “gift”. My family thanks you also. Take care. All the best.
David
Rebecca and David
Mason began having seizures at some point between 2-3 months of age. He was born absolutely perfect. 8lbs 4oz of chubby baby love. He is the completion of our family, having 2 big sisters and a big brother. I knew something was not right with him around 4 months of age when he continued to have "jerks" but the pediatrician assured me that babies can have newborn jerks or the Moro Reflex for some time. He was misdiagnosed again around 6 months of age and it wasn't until he was 8 months old and he had an 8 minute tonic clonic seizure that I brought him to the ER. At that point an MRI was ordered and we found out a month later that he has Tuberous Sclerosis, Epilepsy and Infantile Spasms. This was crushing as I got this diagnosis while my husband who is active duty Army was deployed to the Middle East.  He watched helplessly as I sent him videos of his baby having seizures. We have transferred hospitals and have been working tirelessly with the doctors to try and stop his daily seizures. He is now 17 months old has been on 6 different seizure medications and now the Ketogenic diet. As we are praying daily for control of these seizures we are very thankful that JoshProvides will be providing an Emfit seizure monitor, in hopes that we can sleep a little better at night.
Mason
Dorothy & Mason
I would like to express my profound and sincere gratitude to JoshProvides for the automated medication dispenser and personal emergency response system with a fall detector they have awarded me. Because of their kindness, I will be able to gain back the needed confidence to return to my apartment. This gift will allow me to live independently and safely despite the impairments my seizures have caused.. When I was 26 years old, I was a passenger in a serious car accident and was ejected from the back window. Three years later I developed a seizure disorder. In 2012 Billy, my boyfriend of sixteen years, died of cancer, and two months later, I experienced a serious seizure resulting in hospitalization and cognitive impairment . At this point I had no choice but to move in with my parents. Although I was grateful for the care they provided and continue to provide, it soon became apparent that I needed to learn to live on my own. With the assistance of therapy, I gained my confidence and independence. However, without my parents’ oversight, I am unable to predict when a seizure will occur or respond safely once one has occurred. Recently, after having a seizure in my apartment, I fell on the floor and was unconscious for two hours before gaining enough awareness to get into bed. In the past few weeks, I have been severely challenged. A change in my epilepsy medication resulted in a series of severe seizures, one of which left me unconscious and hospitalized for several days. I am now in the process of transitioning back to my apartment. However these recent seizures have frightened me. Living alone would be extremely difficult if not for the fall detector and automated medication dispenser JoshProvides has enabled me to use for one year. Please accept my sincere appreciation.
Mary Beth
Marybeth
We are so grateful to Josh Provides. Without your help, things would be much harder for us. When Leo was diagnosed with Infantile Spasms we did not know how we would manage.  On top of his seizures, we had to figure out how to borrow money to get to hospital appointments.  We are so lucky you helped us.  By covering supplies for the ketogenic diet and giving us gas cards for transportation, you have relieved A LOT of stress on our family.  A difficult situation would have been a whole lot worse if it weren’t for you.  Whoever came up with the idea for this foundation,
God bless them!
Leo
Leo’s Family
We recently contacted JoshProvides in hopes of acquiring assistance in purchasing an Emfit seizure monitor for our almost two year old daughter, Rachel, and were both thrilled and relieved when we heard the good news! Thanks to the generosity of JoshProvides, we will undoubtedly enjoy a better night’s sleep knowing that Rachel is being monitored and that we will be alerted if need be. Thank you for the comfort, support, and hope you provide for individuals and families who are affected by epilepsy. You are a blessing to many and we are eternally grateful for the gift you have given us. With thanks,
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Katie, Mike, and Rachel
We can't thank everyone at JoshProvides enough for the help with getting an Emfit seizure monitor for our son Wyatt. Wyatt started having infantile spasms and then complex partial seizures. He was diagnosed with Tuberous Sclerosis and epilepsy. Sleep is his main trigger and he wakes up constantly throughout the night. This is going to help us relax a little at night and be able to be alerted when we need to be. Right now I stay up late watching Wyatt to make sure I catch whatever seizures I can and to help calm him down. Our hearts go out to everyone who deals and has dealt with epilepsy. Thank you so much again!!  
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Kelsey, Justin, JJ and Wyatt!
I am so grateful JoshProvides was able to help us obtain an Emfit seizure monitor for our two-year-old son. Connor suffers seizures due to tuberous sclerosis complex and they often occur upon waking. He started having seizures the day he was born and his first 37 days of life were spent in the NICU trying to get them under control. At four months, he had brain surgery. While the surgery helped reduce his complex-partials, a month later he was diagnosed with infantile spasms. We fought those off, only to have other types start. He still has seizure activity to this day, despite medication and the modified Atkins diet. JoshProvides was so quick to respond and we received the monitor within a week. Having the Emfit monitor will help us sleep a little better at night and give him more independence. We are extremely grateful to JoshProvides for the added peace of mind. Sincerely, Connor, Becky and Chris
Connor
Connor, Becky and Chris
Thank you so much for all your help. I can't wait to get the EMFIT Monitor set up and try to get Ben in his crib and sleeping a little more safely. I can't believe how quick this happened. What a blessing. I can't think you all enough. We are off in the morning for Ben's brain MRI, they are going to put him to sleep, and then we also have to go back in the hospital for a two day VEEG, so knowing we are going to get home with some added comfort while he sleeps is such a relief
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Rebecca
My family and I are waiting to receive the EMFIT monitor that your Foundation helped provide for my Neveah. Throughout her ups and downs Neveah is a happy little girl with autism and  fighting her seizures since the age of 3 years old. Sometimes our nights would turn into morning because I am so afraid to go to sleep, sometimes I catch myself jumping out of my bed running into her room because I fell asleep in my room . I never thought after hearing about the EMFIT Monitor that we would have the opportunity and privilege to have one for her. But thanks to your Foundation, you're making a difference in the life of those affected  by seizure disorders. Your generosity of donations will give hope and a little piece of mind to those families like mine.  Also the process has been easy and stress free.  I thank you so much as we are all very grateful to be a part of JoshProvides Foundation. Joselyn ( Mom) Pedro (Dad). Pedro (brother). Jonas.(little brother) and Neveah  from our family, we say THANK YOU so much,  this is a blessing  
Neveah Figueroa Lopez Picture
Neveah
I was diagnosed with epilepsy at age 2 and I am now 24. Although I have tried many medications and surgery we have never been able to fully control my seizures. Where my seizures are coming from is so deep in my brain that all the doctors and EEGs I have done have never been able to locate the focal point of the seizures. I started going to a new doctor in 2011 at the Cleveland Clinic in Weston, FL. After an EEG evaluation my doctor told me that I needed to go up to Ohio where they have better testing that they don’t have in Florida. I was excited about the potential to really get some answers and have more treatment options. I had to fight with my insurance company for over a year to go out of state and then finally decided to change insurance so that we would be able to go to Ohio and have the treatment covered. In March 2014 I finally made it to Ohio. On this 8 day trip I received a surgical evaluation that included a four night stay at the hospital where I had an EEG, MEG scan, and Ictal pect test done. Although this helped them find more information about where my seizures were coming from they still could not fully identify the area where my seizures were coming from but they did narrow it down to three places they thought the focal point was. The doctors said that in order for them to know the exact focal point they would need me to have what is called in depth electrodes or SEEG surgery. I was really excited to go forward and have the surgery! I would hopefully get some answers about if I was a surgical candidate and where my seizures were coming from by placing the electrodes in my brain instead of on my head to catch seizure activity. This surgery they only do in Ohio so I would need to fly back in June in order to have the surgery. Traveling to Ohio was very expensive with the cost of the flight, food, lodging, etc. Our medical bills were also piling up and with all these thousands of dollars we simply didn’t have the money for my mom and I to travel back in June for the surgery. I told this to my doctor and he told me about JoshProvides. When I called JoshProvides, Bruce was so nice and told me about the process to apply. I sent my application in and few days later they called and told me that they were going to pay for our plane tickets! Now I would be able to go back to Ohio to have the surgery! This meant more to me than I can express in words. JoshProvides gave me the opportunity to find answers that no one had been able to give me. My SEEG surgery went well and they were able to catch seizures and find the exact focal point where each of my seizures were coming from! They did a few different tests also to find out if there was functioning in that area. The doctors came back and had the best news I could have hoped for! They are able to take out the piece of my brain where the seizures are coming from!!! The doctors are very hopeful I will be seizure free after the surgery in August! Without JoshProvides I would never have been able to find out this life changing news! I am forever thankful for the assistance JoshProvides gave to me. They truly made a big impact on my journey to become seizure free and I am so inspired by their amazing story and how they are changing the lives people with epilepsy every day!
Heather
Heather
JoshProvides Epilepsy Assistance Foundation represents what is needed for assistance to so many with epilepsy and seizure conditions, particularly when they need it most. They have helped to soften the transportation issues I’ve experienced due to my recent seizure episode, and I am most grateful. I’m hopeful that, through Josh Provides generosity, others will be inspired to provide assistance to others with epilepsy and seizure conditions. Moreover, I trust that many will be motivated to support this Foundation as they continually offer different ways of assisting those in need.
Darryl
Darryl
Hello, Thank You very much for such incredible and amazing support. It took only 24 hrs from the day I had expressed our family need for the Emfit seizure monitor and Your approval. I do not remember having such a fast processing time anywhere else in our past. Our hope that one day our family will be able to bring more peace and assurance for others like You did for us. Our son Edward was one of the twins. They were born at full term and had no complications of any kind. They had breast milk until 18 month old. Edward was very healthy and strong boy. His favorite thing was to lift an item bigger than himself and carry around. He was very interesting in books. He was eating in 10 minutes the same amount our 4 years toddler in half an hour. 99 percent of noise in our house was coming from him. On January 6th of 2014 at around 4 am in the morning life for our family had stopped. Edward's brain was effected by para Influenza 1 virus. I waked up to a very quite sound coming from Edward”s bed-he was having seizure. We do not know for how long he was seizing. Due to heavy snow, it took about 25 minutes for the emergency to arrive. Edward was having seizure all this time. He was not getting any oxygen. Edward was for a week on life support and suffered brain trauma. Edward diagnosed with: seizure disorder, cortical vision impairment. We spent 5 weeks in a hospital. Today, after many prayers Edward is slowly coming back. Doctors said that he will never walk unless he use special equipment. However, his motors skills come back almost 100 percent. He is number one in eating again and we believe his vision is coming back too. We are christian and we do believe for his 100 percent healing because Edward is God’s property. Thank You very much for helping with seizure monitor device because we can not afford the price. I wish every child that has been diagnosed with seizure disorder would have such device. This device can be a child's life saving.
Edward
Alena & Edward
Alyssa is a spirited 18yr old beautiful girl who has been plagued by Epilepsy her entire life. She has had to endure some terrible things over the years.  We have tried numerous different treatments from Medications, VNS surgery, to Brain Surgery for removal of part of her seizure focus.  All have helped but nothing has controlled the seizures completely. She continues to have seizures daily.   Recently, Alyssa's seizures have increasingly gotten worse to the point of her not being able to attend school.  Finally,  we found a cutting edge alternative treatment plan (Neurofeedback).  Since this treatment is relatively new and considered an alternative treatment our insurance company wouldn't cover the cost.  JoshProvides has stepped in and so far we have seen a complete turn around.  She is smiling again, reduced seizures, and a complete new outlook on her future.  She is even back in school.  Without the support of  JOSHPROVIDES we would have never been able to pay for something like this. Thank you for being such a blessing to our family. Chasta and Alyssa
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Alyssa
JoshProvides has been wonderful for us! Our daughter has nocturnal seizures for the most part, I was constantly getting up to check on every single little noise we would hear from her room at night-often not finding anything. Now, with JoshProvides’ help, we've been able to purchase the Sami Monitor to help us monitor our daughter's night time seizures. We could never have afforded to make this purchase, JoshProvides helped us do this. Thank you to everyone that helps run this program, we can't tell you what a blessing you've been to us! -Zach, Jessica, and Ivy.
Ivy
As a new family dealing with Epilepsy we were overwhelmed with fear and anxiety on a daily basis. Our 11 year old daughter Marisa has been diagnosed with Rolandic Epilepsy. She has tonic clonic seizures and they are nocturnal happening when she is asleep.   After the first big seizure which is the most terrifying 8 minutes of my life, out of pure fear, we moved Marisa into our room.  It was a miracle that by chance Marisa was sleeping in my room that morning. If she would have been in her own room, she would not be alive today. Co-sleeping was the only way we could keep her safe at night. But I was not really sleeping much each night, every move and breath Marisa would make sent me into a panic and my eyes were transfixed on her all night long. I realized that there must be something out there that would help me better monitor Marisa as she slept every night. I found the SamiAlert monitor and after some research I knew this would help our family rest at night while being assured that it would alert us if an event happened while we were sleeping. As medical bills are mounting from specialists, surgeries and medical tests, I just knew there was no way we would be able to provide this monitor for her. I didn't give up and as I learned more about Epilepsy Awareness, I found JoshProvides. With one phone call to JoshProvides our lives have been changed forever.  Bruce showed us such kindness and care. He has walked in our shoes and understands what we are going through. He assisted us during each step of the application process which was extremely simple and very fast. From the time we were approved until the monitor arrived in our home was less than one week. The most important thing I want to say is that I feel like our family has been adopted by this new family who supports us and wants us all to help as many people as we can.  Epilepsy comes like a thief in the night without warning. But as long as we support one another and advocate for more awareness and research into more devices like the SamiAlert monitor and support JoshProvides, we can make it through each day. We don't know why we were given this adversity but our family will overcome it and one day soon we will Pay It Forward and help a family through the steep epilepsy learning curve, just as we are being helped now. Lastly I want to say Thank you, to you Josh. I know how proud you are of the Foundation that your parents created to honor you. They are special people and the work that they do shows how special you are. Your foundation has given our family some hope that everything is going to be OK and we are so very grateful.   Sincerely, Michelle & Marisa
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Marisa
Thank you JoshProvides for giving our family peace of mind.  Our daughter Amanda was diagnosed with epilepsy two years ago, when she was eleven.  Just as she was gaining some independence, it had to be taken away.  She has slept with a baby monitor in her room, has had me constantly checking on her when she is in the bathroom, and has not been able to even go outside and shoot hoops without feeling that I am watching her.  It has been heartbreaking to hear her say she feels like she is being punished for having seizures, since she is not able to have the same independence that her friends have.  Since Josh Provides gifted her with the Smart Watch Monitor, she has been thriving in the independence and privacy we are able to give her.  Thank you so much for giving her this life saving gift, and for giving us, her parents, peace of mind and relief from the constant anxiety we have felt for the last two years.  Words cannot express how much your gift is appreciated.
Amanda B Picture 12-18-2013
Kirk, Michele, and Amanda
I would like to thank JoshProvides for giving me a SmartWatch Monitor.  I am 13, and was diagnosed with epilepsy when I was 11.  It was really difficult watching my friends do things together like going to the movies or mall, knowing that the only way I could go with them was if one of my parents went too.  Now that I have the SmartWatch, my parents have been letting me have a little more freedom.  Just yesterday they let me walk around the fair with my friends, and didn’t feel like they had to follow me.  I can’t that you enough.  I am finally starting to feel like a normal kid again!
Amanda B Picture 12-18-2013
Amanda
Daniel is a sweet, handsome, non-verbal 19 year old young man with autism. As if that wasn’t enough to deal with, he also suffers with life threatening seizures. Daniel is also our son. We have learned through our trials with Daniel that autism is nowhere near the hardest thing to deal with on a daily basis. It can't kill him. The seizures can. Seizures are the number one killer of people with autism. It's not unusual for Daniel to stop breathing after a seizure so the fear of losing him because he has had a seizure in the middle of the night is very real. We have a seizure monitor on his bed but it has limited use with a person who doesn't always have full body convulsions, and who often moves to or falls asleep on the floor. The anxiety created by not being able to watch him every minute was unmeasurable. And because he is non-verbal, he can't tell us when he feels a seizure coming on. A seizure dog seemed like the perfect answer. Cassy has alerted to his seizures and we have learned she doesn't even need to follow him around every second in order to do that. Daniel moves around non-stop when he's not sleeping and that quickly wears Cassy out! And for those possible night time seizures, Cassy sleeps in Daniel’s room every night. Seizure dogs are not cheap and we are forever grateful to foundations like Josh Provides who came to our rescue after we had tapped out all our generous family members, good friends and co-workers.  With the addition of Cassy the seizure dog to our household, the anxiety level has decreased to a much more bearable amount. Thank you so much Josh Provides.
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Kim and Mike
I would like to thank JoshProvides in helping me acquire my medication when no one else could. I was diagnosed with epilepsy at eight years old. When I got to be in my late teens I came across a medication that can control it although it's very expensive. Recently I came under a circumstance where I was running out of my medication and it couldn't be gotten to me soon enough by my supplier and I came across Josh Provides and they were the only one that I could find that could aid me getting my medication. Without JoshProvides, it would have been a very severe circumstance for myself. I am eternally grateful to JoshProvides. If there is anything I can ever do for JoshProvides, please don't hesitate to call. Thank you so much.
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John
The service that I received from JoshProvides and Christine of EMFIT was exceptional and I’m very grateful that I was referred to your organization. I finally was able to speak with someone who really cared and was concerned in helping me with my desperation in finding a solution.  Thank you for all the care and devotion and quick response from your organization. It has provided my family and I with a sense of relief. Respectfully,
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Elena
Tiffany has had epilepsy since she was 6 years old. Her seizures have gotten worse the last 2 years. She has had a VNS implanted recently. Tiffany is a very vibrant and strong willed teenager. We have started the process of obtaining a seizure response dog. She has chosen the name Element as he will be a key element in her battle with Epilepsy. And give her mom reassurance that she has a furry loving service dog to assist her. Josh Provides has so graciously assisted with help from a grant to help us bring Element home once he is trained. Thank you so much for your help. We will never forget it. Tiffany Arends Dog Element
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Teresa and Tiffany
My son, Collin was diagnosed with epilepsy at age 4.  He was controlled by medication until age 11, he is now 14 and uncontrolled.  At age 12 he had a severe (almost fatal) reaction to seizure medications.  He went into acute respiratory distress and was in ICU for 2 weeks and total hospitalization plus rehab for 3 months.  He had VNS surgery before we went to rehab. Unfortunately nothing helped the seizures.  They were small but he had several a day.  He was only on 1 seizure med (Topamax) and valium to help control his seizures.  We tried ketogenic diet and MAD diet and he is currently on a restricted diet.  Recently (December 2013) his seizures got worse and he started having tonic clonic seizures and drop seizures.  The doctors just wanted to increase valium which was not helping.  I found JoshProvides web site and sent in our story and frustration.  Bruce Chapnick contacted me and told me about the next support group meeting sponsored by JoshProvides. I was excited and looking forward to meeting other parents and Collin meeting other teens that are in our situation.  Collin is an amazing young man.  He always has a smile and a huge heart.  He has been to so many hospitals and ambulances and he doesn't let that get him down.  After he has a seizure, he will tell us not to worry. We are trying to learn from him and follow his resilience. Cleveland Clinic On Jan 9th Collin had a bad seizure at his after school program and fell on his face. He broke two teeth and needed a root canal and composite tooth. This was very scary because now he was getting hurt and we were lucky that he didn't fall and hit his head.  I remember feeling frustrated and completely hopeless.  That evening I emailed Bruce and he contacted me right away offering support and would look to see if we could get into the Cleveland Clinic.  Then on Jan 28th, my birthday, Bruce called me and told me he got us into the Cleveland Clinic and JoshProvides was  going to pay for the transportation.  I was sooo excited.  We finally had hope to get answers for Collin.  I feel confident that they will have answers and help for Collin.  I put together all the records and sent to the Cleveland Clinic.  They contacted me in less than a week and already had a plan for Collin.  We are going there 3/3/14-3/8/14. I am impressed with their knowledge of Collin already and they haven't even met him.  I am so thankful for JoshProvides getting us connected with the Cleveland Clinic and providing the opportunity for us to be seen there.  This was the best birthday present ever. Emfit Monitor Feb 2014, Collin started having nocturnal seizures. This was scary, so now I had to sleep with Collin and worry constantly.  I wasn't sleeping well and this was affecting me negatively.  I expressed this concern at the February support group meeting. Bruce advised me to look on the JoshProvides website for links to seizure monitoring devices and to complete an application for financial assistance to get a monitor.  I completed the application and in less than 1 week the bed monitor arrived.  It was easy to set up and test.  I now have my sleep back.  I can rest knowing that I will be alerted in the event Collin has a seizure in his sleep.  In 1 month, JoshProvides has given our family our life back by reducing anxiety, given us hope and so much support.  We don't feel isolated or alone. Thank you
Collin Robinson jpegDec 2013
Laura and Collin
We want to thank JoshProvides for providing our daughter with an Emfit Movement monitor. Rachael has been having seizures since she was 7 months old, diagnosed with Epilepsy at 2. She often has seizures during the night, and sometimes they have gone undetected even though she has never slept alone in a room. We've had several close calls and many regressions in her short 10 years. Thankfully medications are helping reduce the frequency of her seizures, but it makes it all the harder to try and give her the space and privacy most pre-teens want... because, we just never know and the risk is so great. But with your kind and generous help, you have given us something we could not have gotten for ourselves. And more than just the monitor that gives us a way to be alerted quickly to any nighttime seizure activity so it can be treated quickly (which will go a long way in preventing any further regressions from prolonged seizures), but it will also give our whole family a level of peace of mind previously not possible, while giving Rachael the ability to sleep in her own room, on her own. Something every young girl should be able to do safely and all parents should be able to allow without constant anxiety that a seizure could go undetected. We thank you from the bottom of our hearts! More than words can convey...Thank you! Thank you! THANK YOU!
RachaelEmans Photo 12-4-2013
Theresa
I would like to thank JoshProvides.org from the bottom of my heart for giving us one of the greatest Christmas presents this year. It's called peace of mind for us his parents but more importantly for Keegan (9 years old) independence. Since Keegan's first Grand Mal seizure in May of 2010 he has slept in bed with us because his seizures are nocturnal. What an awesome gift for a little boy who just wants to be like all his friends and gets to sleep in his Pittsburgh Steeler themed room! There is truly no words to express my gratitude to the Chapnick Family but thank you so very much! Love
KEEGAN SHIPLEY PHOTO 12-6-2013
Matt, Nicole and Keegan
We would like to thank “joshprovides” for their wonderful gift of peace of mind through the purchase of an Emfit monitor for our 15 year old daughter Desiree. Desiree has been diagnosed with epilepsy for over six years and like so many others the majority of her seizures occur while sleeping.  As a parent it is very difficult to tuck your child into bed and not know if it will be your final goodnight kiss.  Again thank you for your generosity, peace of mind, and for sharing Josh’s story.
DESIREE TENNANT PICTURE 11-11-2013
Desiree and Family
Dear everyone at Josh Provides,
I can't thank you enough for the blessing of the Smart-Monitor you made possible for me to obtain.  Although I have had temporal lobe epilepsy for over 12 years, this past year has been the most difficult.  Because of my seizures I have fallen down my stairs resulting in 3 knee surgeries, and had my driver's license suspended until my seizures are back under control. Every time I got close to the 6 month expiration date, I'd have another seizure. The most recent lasted 45 minutes. I am raising my 5 year old special needs grandson and I have not been able to take him to places such as the zoo, library or even the park because my family has not been comfortable with us taking the local paratransit for any recreational purposes for fear I'd have a seizure and my grandson would be alone.  The only way I've been able to go anywhere is to rely on my mother who is taking care of her husband with Alzheimer's. Needless to say, she gets very worn out on the weeks I have Dr. appointments and need to go grocery shopping.  By making it possible for me to have a Smart-Monitor, you have given me something I haven't had in a long time. Confidence, more independence and the blessing of my family to take my grandson on outings via paratransit.  I just received the Smart-Monitor and am still getting acclimated to it, yet already I see the difference in the stress level and worry in my mother. I even am more relaxed knowing if I do have a seizure, someone will be alerted and my grandson won't be left alone to deal with it. Since I have just received the Smart-Monitor, I will check in from time to time to update you on the difference your kindness has made in my life. My son Joshua is much like Josh in his beliefs and how he lived his life.  Thank you for creating a lasting legacy that will touch so many lives in so many ways. Thank you for your convictions and beliefs. Thank you for being the blessing in not just my life but in the lives of others. My neurologist watched the testimonials and was actually brought to tears. Although he is retiring this month, he is going to keep in contact with me and has committed to me to support your organization in any way he is needed. God's love reaches out in ways never expected and never goes unappreciated. I am truly grateful and I do feel blessed. Thank you so very, very much. In appreciation and love,
CHRISTINE MATTOS PICTURE 11-12-2013
Chris
"I wanted to take a moment to thank you and your organization for assisting us with getting an Emfit monitor for my son (Morgan). Most of his seizures happen at night while sleeping. My biggest fear is that I will not know when one is happening and not be able to help him in time. I wanted to send my thank you sooner, however, this is the first chance I've had, as my son has been in the hospital ever since we received notice of your gift. The words thank you simply do not seem like enough, especially right now, knowing my son's seizures are out of control. I had a sense of relief knowing that help was on the way and I owe that to you all. Once again, thank you with every fiber of my being!!!"   Cindy and Morgan
Morgan Stillwagon 10-29-2013 Picture(1)
Morgan
To the entire JoshProvides team: I cannot even begin to express into words how thankful I am for you providing my son, Joseph with an EMFIT seizure monitor. When Joseph was a toddler, I spent every night next to him to catch his nocturnal seizures. As he grew, and the seizures increased in severity, I began to sit up and watch and wait instead of sleep. Now at 17 yrs old, Joey begs for his privacy and asks that I please listen from down the hall. I have tried baby monitors, walkie talkies, and simply staying awake all night just to listen for activity. Surely there was a better way. How much longer would his brain be able to keep seizing at night and me not getting to him in time? Many times, I would hear a noise, bolt to his bedroom and find he had fallen out of bed and was lying face down in the carpet, many times laying in his own vomit. I finally heard about JoshProvides through EMFIT Corp and i had hope. After reading Josh's story, I contacted Mr. Chapnick who basically walked me through the process. Very soon, we will have our seizure monitor. Joseph will have the privacy he so desperately longs for and I will have the peace of mind knowing that EMFIT, God, and Josh are keeping a watchful eye and ear on my sweet boy until I am needed. Thank you seems too simple. You have given me more than you know. May God bless the entire JoshProvides family and EMFIT Corp as well. My cup runneth over. Very sincerely yours - Liane and Joey
Joseph
Liane and Joey
I just wanted to say thank you to JoshProvides for its assistance! The EMFIT monitor has helped me help Hayden out so many times! Because Hayden has drop down seizures he has to wear a helmet when he’s out of bed. The monitor helps me know when he’s awake, or gets out of bed. I had no idea Hayden was having seizures in his sleep until you all provided this for Hayden. Thank you for finally giving us security while we sleep.
Kelsey
Kelsey
I have had grand mall seizures on a daily basis since I was ten. As a result of this, finding a way to support myself or even walk my dogs around the block by myself is a major endeavor. I look forward to the independence that my seizure watch will provide me.  I wish to express my deepest appreciation to JoshProvides Epilepsy Assistance Foundation for providing the financial assistance needed for me to receive the Smart Watch.
 
Stanley
Stanley
I would like to thank you from the bottom of my heart for helping us get the Emfit movement monitor for my son, Leland. In August 2011, he started having infantile spasms. Since April, he has had at least 1 grand mal (tonic clonic) seizure a month. He has been sleeping in my bed since. Between him going into status elipticus, being airlifted to Duke, & many hospital visits, this takes a huge weight of my shoulders and he can sleep in his own bed again. I just want to thank you again and say I’m glad they’re people like your family to help my family.
Leland
Christine