• Shoshanah
  • Kelsey
  • Stanley
  • Jacob
  • Leland
  • Ryan
  • Xander
  • Michael
  • Wotay
  • Jared
  • Sean
  • Edgar
  • Ray
  • Michael
  • Emily
  • David
  • Dixie
  • Steve
  • Maricella
  • Nadia
  • Dear Mr. Chapnick & JoshProvides, Thank you so much for the grant to help us pay for our new seizure response dog, Goldie, for our daughter, Helen. Goldie is already changing our lives for the better. Thank you for all the tremendous work you do to help our epilepsy community.  I admire your strength and dedication.
    Helen Heuer Picture
    Amy, Helen, Chris, Ben & Goldie
  • I cannot begin to thank JoshProvides for the peace of mind the SAMi-3 monitor will provide to me in monitoring my daughter’s night seizures.  My daughter Sydney has both Epilepsy and Sensory Processing Disorder.  The aspect of “missing” a seizure is a daily stressor for me, and being a widow who has two jobs, the cost of the monitor was a bit limiting.  JoshProvides came through and gave me the peace of mind that I so badly needed.  The thought that I would miss a seizure during the night, and have it cause an adverse effect for my child is an emotionally crippling scenario.  I am so grateful to Bruce Chapnick with JoshProvides and Cynthia Anderson at HiPass Design, LLC for the speed in which my request was processed.  Sydney was approved for the SAMi-3 monitor within two weeks and everyone I have dealt with has been amazing, and kept me informed throughout the process. Thank you again for all that you do for those fighting Epilepsy,
    Photo
    Jennifer (Sydney’s Mom)
  • Jackson was born on June 4, 2014 with a port wine stain on the left side of his face. Only 1 in 5 thousand babies are born with the stain on their face and 1 in 30 thousand have the full syndrome. The full syndrome (Sturge-Weber) causes seizures, neurological damage and glaucoma. When Jackson was 2 months old he had a trabeculotomy surgery to try and release the pressure in his left eye. The surgery worked for 3 months before they had to go back in to place a Ahmed Shunt in his left eye due to his glaucoma and pressure increasing. Jackson is now wearing glasses and his eye seems to be doing much better. Jackson is also having laser treatments to lighten the port wine stain. At 3 months of age Jackson had an EEG and MRI and everything came back fine. Recently, we visited a neurologist in Baltimore at the Kennedy Krieger Institute who ordered Jackson's 2nd EEG. The EEG showed low brain activity on the left side which makes Jackson a candidate for seizures. The neurologist prescribed medication for Jackson if he were to have a seizure longer than 3 minutes. Jackson's next scan is an MRI, MRV and MRA to determine how much of the brain that has been affected and exactly what part.
    Due to Jackson's medical condition and the many doctor visits in and out of town, I had to quit work to stay home with him. With me being at home with Jackson everyday it is easy during the day for me to detect a seizure. The problem comes during the night when we have no way to know if he is having a seizure or not. The neurologist recommended an EMFIT monitor, but insurance did not cover it. Jackson's doctor and nurses in Baltimore suggested we contact JoshProvides to see if they could provide us with a monitor. After contacting Mr. Chapnick, within 2 weeks we had an approval for the monitor. The monitor was shipped out and we received it within 2 days. Mr. Chapnick and his team have been a wonderful group of people to work with. They have provided us with a great piece of mind in monitoring Jackson's sleeping at night. Thank you so much for everything you have done for our family to make our situation easier to deal with.
     
    Jackson Kyser Family
    Ashley, Jason and Jackson
6Shortly after Josh passed away, Sandi, Nicole and Bruce Chapnick (the “Chapnick Family”) established the Joshua David Chapnick Memorial Fund (“JDCMF”) with the Community Foundation of Sarasota County (“CFSC”) in honor and memory of Josh who died from a fatal seizure. CFSC is a tax-exempt organization under IRC Section 501(c)(3) and a public charity under IRC Section 509(a)(1) or (2)…read more

Services We Provide

How We Use Our Funds

Except for the funds maintained in the Foundation’s general operating account to award financial assistance and overhead costs of operation, all donor funds are held and invested by Community Foundation of Sarasota County…read more

How To Apply For Assistance

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The charitable purpose of JoshProvides Epilepsy Assistance Foundation (“JoshProvides Foundation” or “Foundation”) is to educate, increase awareness, and provide financial assistance for people living with epilepsy and seizure disorders and their families…read more

Support Groups

JoshProvides Epilepsy Assistance Foundation (“Foundation” or “JoshProvides”) organized its first EPILEPSY SUPPORT GROUP for the greater Sarasota/Manatee County, Florida area for the benefit of those living with epilepsy and their families on January 15, 2013. Monthly meetings are held on the first Monday of each month from 6:30pm to 8:00pm, at 2033 Main Street, Suite 301, Center Pointe Building, Sarasota, FL 34237.

Faces of JoshProvides

You open your hand, and provide for all the living

Josh’s Epitaph and Basis for JoshProvides

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JoshProvides Epilepsy Assistance Foundation is a Florida not-for-profit corporation. The Internal Revenue Service (“IRS”) has determined that the Foundation is exempt from Federal income tax under Section 501(c)(3)…

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All Contributions Count

JoshProvides Epilepsy Assistance Foundation, Inc. (“JoshProvides Foundation”) is administered by its Board of Directors

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Circle of Providers

Many individuals and businesses have committed to the JoshProvides Epilepsy Assistance Foundation (“JoshProvides Foundation”) a contribution to help preserve the long term Mission of JoshProvides Foundation in…

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JoshProvides Circle of Influence

Many individuals and organizations are contributing to the JoshProvides cause, and we thank all of you for your support…

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Get Involved

JoshProvides Epilepsy Assistance Foundation, Inc. (“JoshProvides Foundation”) is a strong financial supporter for people with epilepsy…

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Sponsors

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The Giving Partner
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