• Shoshanah
  • Kelsey
  • Stanley
  • Jacob
  • Leland
  • Ryan
  • Xander
  • Michael
  • Wotay
  • Jared
  • Sean
  • Edgar
  • Ray
  • Michael
  • Emily
  • David
  • Dixie
  • Steve
  • Maricella
  • Nadia
  • Cierra was born at 36 weeks from a 50% placenta abruption having to stay in NICU for three and half weeks. Due from the lack of oxygen at birth she was diagnosed with Infantitle Cerebral Palsy and Severe Brain Damage, Failure to thrive in childhood, development delay, microcephaly and numerous other diagnoses. At about 2 weeks old Cierra had a seizure that lasted for about 2 hours. The doctors told me that she would be lucky if she made it to 3 months old and she is now 11 years old; praise god!!! Cierra is a silent aspirator; so she is strictly G-Tube feed. She has under gone a list of surgeries from deformity of Acquired hip nec, with CP bilital hip dislocation this was to put her hips in the sockets because the were dislocated about 2 inches, they also at this time did lengthening of the muscles, lengthening of the hamstrings and tendons, she just recently in April 2014 under went a Spinal Fusion, and had to re-have in September and December of 2014 due to the hardware being bad. Although Cierra has tried many medications nothing seems to help her other than making her extremely sleepy, she has never really been able to control the seizures and we really never know what we are looking for because they are always different they are never the same. They have done EEG and MRI’s to determine where Cierra’s seizures are coming from but so far no luck, we have even been told by doctors that we will probably never find out where they are coming from and will probably never become seizure free that out only hope is Cannabis Oil. So after hearing the news that we would never become seizure free I started researching about the Sami Sleep Activity Monitor and determined that due to the amount that it cost I would never be able to afford one for Cierra. I just happened to run into a friend at CHOA and she was telling about the same device that she had just got for her daughter and about JoshProvides Epilepsy Assistance Foundation (joshprovides.org).  So I go home and I look up the information and that is were I find out that all I had to do was apply to see if I were able to get Cierra help for this activity monitor. I sent and email and finally got all paper work completed by the doctor and received an email back that we were approved. What exciting news for us.  Bruce and his team were so nice and provided me with email response quickly on the process from start to finish. This means the world to me to know that I can hopefully have some restful nights sleep and not have to get up and down going in to check on Cierra. JoshProvides has given me peace with knowing that they have been able to help me receive the Sami Activity Monitor that I needed for Cierra. Now we wait for our Monitor so that we can catch these seizures and have evidence for the doctors to determine what Cierra’s next step is. Thank you so much for everything that you have done for my family…. May God bless you for everything that you do!!
    cierra smile
    Melisa (Cierra’s mom) and Cierra
  • Sammy’s parents believe he began having absence seizures in his early childhood, but it couldn’t be ruled out as an Autism zone-out. It wasn’t until he was eight years old that Sammy had his first tonic-clonic seizure. It would be a month before another seizure would strike, however, they came hard and fast after that. By mid-June 2014, Sammy had been transported by EMS four times and hospitalized twice. He was taking multiple anti-seizure medications, having found to be allergic to two of them. Not only was Sammy’s mom, Andrea, tending to his needs, she was also actively treating for rhabdomyosarcoma, a rare connective tissue cancer. But the family worked together with friends, family and community members to raise funds, all while dealing with hospitalizations for two of four family members. Andrea and her husband, Eric, had decided to work with Palm City-based Canines 4 Hope. Andrea then reached out to the Chelsea Hutchinson Foundation. It was Julie that helped Andrea connect with the Chapnicks. Raising funds for a service dog is a challenge that many parents feel overwhelmed by. When Bruce shared with Andrea JoshProvides was willing to help, this brought a great relief to everyone. Sybil is an American yellow Labrador who was born December 25, 2013 in St. James, MO. She came to Florida in October 2014 and began her training. Andrea sent t-shirts worn by Sammy, as well as washcloths she had wiped Sammy down with after a seizure. This was to aide trainers train Sybil in knowing Sammy ahead of time. Sybil came home on March 6, 2015 bringing a calm over the entire family.  Sammy and Sybil have trained together in public, at home, and will begin training at school soon. They are a perfect pair and love each other already. Andrea and Sammy
    Sammy Seratti and Sybil Picture
    Sammy
  • You have truly Blessed our family in a way that no one could possibly understand. Kyler was born with Preventricular Nodular heterotpia and as a result developed Epilepsy and Autism. Every 5 days Kyler goes status epilepticus, and every day he has numerous absence and drop attack seizures. We have faced injury many times from seizures because we couldnt break his fall or help him quick enough. With the help of Josh Provides we are able to get Kyler a Service Dog who he calls his "Superhero Doggie" and we are all so excited to bring him home. Kyler has faced seizures during school and on the school bus with his Superhero Doggie he will have someone right there by his side to give off warning and help quicker than his teachers and bus driver can, and he will have the comforting friend by his side through it all. We can never thank you enough for all you have done for us, or for all the support you have given us. We are looking forward to writing you again once we get Copper the Superhero Doggie home.
    903581_620201874660037_952053914_o
    Julie
6Shortly after Josh passed away, Sandi, Nicole and Bruce Chapnick (the “Chapnick Family”) established the Joshua David Chapnick Memorial Fund (“JDCMF”) with the Community Foundation of Sarasota County (“CFSC”) in honor and memory of Josh who died from a fatal seizure. CFSC is a tax-exempt organization under IRC Section 501(c)(3) and a public charity under IRC Section 509(a)(1) or (2)…read more

Services We Provide

How We Use Our Funds

Except for the funds maintained in the Foundation’s general operating account to award financial assistance and overhead costs of operation, all donor funds are held and invested by Community Foundation of Sarasota County…read more

How To Apply For Assistance

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The charitable purpose of JoshProvides Epilepsy Assistance Foundation (“JoshProvides Foundation” or “Foundation”) is to educate, increase awareness, and provide financial assistance for people living with epilepsy and seizure disorders and their families…read more

Support Groups

JoshProvides Epilepsy Assistance Foundation (“Foundation” or “JoshProvides”) organized its first EPILEPSY SUPPORT GROUP for the greater Sarasota/Manatee County, Florida area for the benefit of those living with epilepsy and their families on January 15, 2013. Monthly meetings are held on the first Monday of each month from 6:30pm to 8:00pm, at 2033 Main Street, Suite 301, Center Pointe Building, Sarasota, FL 34237.

Faces of JoshProvides

You open your hand, and provide for all the living

Josh’s Epitaph and Basis for JoshProvides

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JoshProvides Epilepsy Assistance Foundation is a Florida not-for-profit corporation. The Internal Revenue Service (“IRS”) has determined that the Foundation is exempt from Federal income tax under Section 501(c)(3)…

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All Contributions Count

JoshProvides Epilepsy Assistance Foundation, Inc. (“JoshProvides Foundation”) is administered by its Board of Directors

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Circle of Providers

Many individuals and businesses have committed to the JoshProvides Epilepsy Assistance Foundation (“JoshProvides Foundation”) a contribution to help preserve the long term Mission of JoshProvides Foundation in…

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JoshProvides Circle of Influence

Many individuals and organizations are contributing to the JoshProvides cause, and we thank all of you for your support…

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Get Involved

JoshProvides Epilepsy Assistance Foundation, Inc. (“JoshProvides Foundation”) is a strong financial supporter for people with epilepsy…

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Sponsors

01 iCard
02 http://www.ntrs.com/
Altmed
Chelsea Hutchison Foundation
Clevland Clinic
http://doctorsofsarasota.com/
http://gofiveguys.com/menu/sarasota-university-park/
http://purmort.com/
http://us.cyberonics.com/en/vns-therapy/
http://www.cyberonics.com/?referer=us
http://www.emfit.com/
http://www.h20america.com/
http://www.halleyimages.com/
http://www.hawcpa.com/
http://www.portfoliostrategygroup.com/
http://www.smart-monitor.com/
http://www.smart-monitor.com/
http://www.wealthenjoyment.com/
John Cannon Homes
Sarasota Ford
Sarasota Memorial Hospital
The Giving Partner
The Soda Group

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