• Shoshanah
  • Kelsey
  • Stanley
  • Jacob
  • Leland
  • Ryan
  • Xander
  • Michael
  • Wotay
  • Jared
  • Sean
  • Edgar
  • Ray
  • Michael
  • Emily
  • David
  • Dixie
  • Steve
  • Maricella
  • Nadia
  • Alyssa is a spirited 18yr old beautiful girl who has been plagued by Epilepsy her entire life. She has had to endure some terrible things over the years.  We have tried numerous different treatments from Medications, VNS surgery, to Brain Surgery for removal of part of her seizure focus.  All have helped but nothing has controlled the seizures completely. She continues to have seizures daily.   Recently, Alyssa's seizures have increasingly gotten worse to the point of her not being able to attend school.  Finally,  we found a cutting edge alternative treatment plan (Neurofeedback).  Since this treatment is relatively new and considered an alternative treatment our insurance company wouldn't cover the cost.  JoshProvides has stepped in and so far we have seen a complete turn around.  She is smiling again, reduced seizures, and a complete new outlook on her future.  She is even back in school.  Without the support of  JOSHPROVIDES we would have never been able to pay for something like this. Thank you for being such a blessing to our family. Chasta and Alyssa
    Alyssa Argo jpeg picture
    Alyssa
  • JoshProvides has been wonderful for us! Our daughter has nocturnal seizures for the most part, I was constantly getting up to check on every single little noise we would hear from her room at night-often not finding anything. Now, with JoshProvides’ help, we've been able to purchase the Sami Monitor to help us monitor our daughter's night time seizures. We could never have afforded to make this purchase, JoshProvides helped us do this. Thank you to everyone that helps run this program, we can't tell you what a blessing you've been to us! -Zach, Jessica, and Ivy.
    Ivy
  • As a new family dealing with Epilepsy we were overwhelmed with fear and anxiety on a daily basis. Our 11 year old daughter Marisa has been diagnosed with Rolandic Epilepsy. She has tonic clonic seizures and they are nocturnal happening when she is asleep.   After the first big seizure which is the most terrifying 8 minutes of my life, out of pure fear, we moved Marisa into our room.  It was a miracle that by chance Marisa was sleeping in my room that morning. If she would have been in her own room, she would not be alive today. Co-sleeping was the only way we could keep her safe at night. But I was not really sleeping much each night, every move and breath Marisa would make sent me into a panic and my eyes were transfixed on her all night long. I realized that there must be something out there that would help me better monitor Marisa as she slept every night. I found the SamiAlert monitor and after some research I knew this would help our family rest at night while being assured that it would alert us if an event happened while we were sleeping. As medical bills are mounting from specialists, surgeries and medical tests, I just knew there was no way we would be able to provide this monitor for her. I didn't give up and as I learned more about Epilepsy Awareness, I found JoshProvides. With one phone call to JoshProvides our lives have been changed forever.  Bruce showed us such kindness and care. He has walked in our shoes and understands what we are going through. He assisted us during each step of the application process which was extremely simple and very fast. From the time we were approved until the monitor arrived in our home was less than one week. The most important thing I want to say is that I feel like our family has been adopted by this new family who supports us and wants us all to help as many people as we can.  Epilepsy comes like a thief in the night without warning. But as long as we support one another and advocate for more awareness and research into more devices like the SamiAlert monitor and support JoshProvides, we can make it through each day. We don't know why we were given this adversity but our family will overcome it and one day soon we will Pay It Forward and help a family through the steep epilepsy learning curve, just as we are being helped now. Lastly I want to say Thank you, to you Josh. I know how proud you are of the Foundation that your parents created to honor you. They are special people and the work that they do shows how special you are. Your foundation has given our family some hope that everything is going to be OK and we are so very grateful.   Sincerely, Michelle & Marisa
    Marisa Ray-jpeg picture
    Marisa
6Shortly after Josh passed away, Sandi, Nicole and Bruce Chapnick (the “Chapnick Family”) established the Joshua David Chapnick Memorial Fund (“JDCMF”) with the Community Foundation of Sarasota County (“CFSC”) in honor and memory of Josh who died from a fatal seizure. CFSC is a tax-exempt organization under IRC Section 501(c)(3) and a public charity under IRC Section 509(a)(1) or (2)…read more

Services We Provide

How We Use Our Funds

Except for the funds maintained in the Foundation’s general operating account to award financial assistance and overhead costs of operation, all donor funds are held and invested by Community Foundation of Sarasota County…read more

How To Apply For Assistance

Download Application
The charitable purpose of JoshProvides Epilepsy Assistance Foundation (“JoshProvides Foundation” or “Foundation”) is to educate, increase awareness, and provide financial assistance for people living with epilepsy and seizure disorders and their families…read more

Support Groups

JoshProvides Epilepsy Assistance Foundation (“Foundation” or “JoshProvides”) organized its first EPILEPSY SUPPORT GROUP for the greater Sarasota/Manatee County, Florida area for the benefit of those living with epilepsy and their families on January 15, 2013. Monthly meetings are held on the first Monday of each month from 6:30pm to 8:00pm, at 2033 Main Street, Suite 301, Center Pointe Building, Sarasota, FL 34237.

Faces of JoshProvides

You open your hand, and provide for all the living

Josh’s Epitaph and Basis for JoshProvides

Donate Online

JoshProvides Epilepsy Assistance Foundation is a Florida not-for-profit corporation. The Internal Revenue Service (“IRS”) has determined that the Foundation is exempt from Federal income tax under Section 501(c)(3)…

View details

All Contributions Count

JoshProvides Epilepsy Assistance Foundation, Inc. (“JoshProvides Foundation”) is administered by its Board of Directors

View details

Circle of Providers

Many individuals and businesses have committed to the JoshProvides Epilepsy Assistance Foundation (“JoshProvides Foundation”) a contribution to help preserve the long term Mission of JoshProvides Foundation in…

View details

JoshProvides Circle of Influence

Many individuals and organizations are contributing to the JoshProvides cause, and we thank all of you for your support…

View details

Get Involved

JoshProvides Epilepsy Assistance Foundation, Inc. (“JoshProvides Foundation”) is a strong financial supporter for people with epilepsy…

View details

Become a Volunteer

Learn more on how to become a volunteer…

View details

Sponsors

01 iCard
02 http://www.ntrs.com/
Chelsea Hutchison Foundation
http://doctorsofsarasota.com/
http://gofiveguys.com/menu/sarasota-university-park/
http://purmort.com/
http://us.cyberonics.com/en/vns-therapy/
http://www.cyberonics.com/?referer=us
http://www.emfit.com/
http://www.h20america.com/
http://www.halleyimages.com/
http://www.hawcpa.com/
http://www.portfoliostrategygroup.com/
http://www.smart-monitor.com/
http://www.smart-monitor.com/
http://www.thesodagroup.com/
http://www.wealthenjoyment.com/
SRQ

Send us a message!

Your Name (required)

Street Address (required)

City, State and Zip Code (required)

Your Email (required)

Phone (required)

What's Your Connection to Epilepsy?

Your Message

captcha