• Shoshanah
  • Kelsey
  • Stanley
  • Jacob
  • Leland
  • Ryan
  • Xander
  • Michael
  • Wotay
  • Jared
  • Sean
  • Edgar
  • Ray
  • Michael
  • Emily
  • David
  • Dixie
  • Steve
  • Maricella
  • Nadia
  • Mason began having seizures at some point between 2-3 months of age. He was born absolutely perfect. 8lbs 4oz of chubby baby love. He is the completion of our family, having 2 big sisters and a big brother. I knew something was not right with him around 4 months of age when he continued to have "jerks" but the pediatrician assured me that babies can have newborn jerks or the Moro Reflex for some time. He was misdiagnosed again around 6 months of age and it wasn't until he was 8 months old and he had an 8 minute tonic clonic seizure that I brought him to the ER. At that point an MRI was ordered and we found out a month later that he has Tuberous Sclerosis, Epilepsy and Infantile Spasms. This was crushing as I got this diagnosis while my husband who is active duty Army was deployed to the Middle East.  He watched helplessly as I sent him videos of his baby having seizures. We have transferred hospitals and have been working tirelessly with the doctors to try and stop his daily seizures. He is now 17 months old has been on 6 different seizure medications and now the Ketogenic diet. As we are praying daily for control of these seizures we are very thankful that JoshProvides will be providing an Emfit seizure monitor, in hopes that we can sleep a little better at night.
    Mason
    Dorothy & Mason
  • I would like to express my profound and sincere gratitude to JoshProvides for the automated medication dispenser and personal emergency response system with a fall detector they have awarded me. Because of their kindness, I will be able to gain back the needed confidence to return to my apartment. This gift will allow me to live independently and safely despite the impairments my seizures have caused.. When I was 26 years old, I was a passenger in a serious car accident and was ejected from the back window. Three years later I developed a seizure disorder. In 2012 Billy, my boyfriend of sixteen years, died of cancer, and two months later, I experienced a serious seizure resulting in hospitalization and cognitive impairment . At this point I had no choice but to move in with my parents. Although I was grateful for the care they provided and continue to provide, it soon became apparent that I needed to learn to live on my own. With the assistance of therapy, I gained my confidence and independence. However, without my parents’ oversight, I am unable to predict when a seizure will occur or respond safely once one has occurred. Recently, after having a seizure in my apartment, I fell on the floor and was unconscious for two hours before gaining enough awareness to get into bed. In the past few weeks, I have been severely challenged. A change in my epilepsy medication resulted in a series of severe seizures, one of which left me unconscious and hospitalized for several days. I am now in the process of transitioning back to my apartment. However these recent seizures have frightened me. Living alone would be extremely difficult if not for the fall detector and automated medication dispenser JoshProvides has enabled me to use for one year. Please accept my sincere appreciation.
    Mary Beth
    Marybeth
  • We are so grateful to Josh Provides. Without your help, things would be much harder for us. When Leo was diagnosed with Infantile Spasms we did not know how we would manage.  On top of his seizures, we had to figure out how to borrow money to get to hospital appointments.  We are so lucky you helped us.  By covering supplies for the ketogenic diet and giving us gas cards for transportation, you have relieved A LOT of stress on our family.  A difficult situation would have been a whole lot worse if it weren’t for you.  Whoever came up with the idea for this foundation,
    God bless them!
    Leo
    Leo’s Family
6Shortly after Josh passed away, Sandi, Nicole and Bruce Chapnick (the “Chapnick Family”) established the Joshua David Chapnick Memorial Fund (“JDCMF”) with the Community Foundation of Sarasota County (“CFSC”) in honor and memory of Josh who died from a fatal seizure. CFSC is a tax-exempt organization under IRC Section 501(c)(3) and a public charity under IRC Section 509(a)(1) or (2)…read more

Services We Provide

How We Use Our Funds

Except for the funds maintained in the Foundation’s general operating account to award financial assistance and overhead costs of operation, all donor funds are held and invested by Community Foundation of Sarasota County…read more

How To Apply For Assistance

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The charitable purpose of JoshProvides Epilepsy Assistance Foundation (“JoshProvides Foundation” or “Foundation”) is to educate, increase awareness, and provide financial assistance for people living with epilepsy and seizure disorders and their families…read more

Support Groups

JoshProvides Epilepsy Assistance Foundation (“Foundation” or “JoshProvides”) organized its first EPILEPSY SUPPORT GROUP for the greater Sarasota/Manatee County, Florida area for the benefit of those living with epilepsy and their families on January 15, 2013. Monthly meetings are held on the first Monday of each month from 6:30pm to 8:00pm, at 2033 Main Street, Suite 301, Center Pointe Building, Sarasota, FL 34237.

Faces of JoshProvides

You open your hand, and provide for all the living

Josh’s Epitaph and Basis for JoshProvides

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JoshProvides Epilepsy Assistance Foundation is a Florida not-for-profit corporation. The Internal Revenue Service (“IRS”) has determined that the Foundation is exempt from Federal income tax under Section 501(c)(3)…

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All Contributions Count

JoshProvides Epilepsy Assistance Foundation, Inc. (“JoshProvides Foundation”) is administered by its Board of Directors

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Circle of Providers

Many individuals and businesses have committed to the JoshProvides Epilepsy Assistance Foundation (“JoshProvides Foundation”) a contribution to help preserve the long term Mission of JoshProvides Foundation in…

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JoshProvides Circle of Influence

Many individuals and organizations are contributing to the JoshProvides cause, and we thank all of you for your support…

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Get Involved

JoshProvides Epilepsy Assistance Foundation, Inc. (“JoshProvides Foundation”) is a strong financial supporter for people with epilepsy…

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Sponsors

01 iCard
02 http://www.ntrs.com/
Altmed
Chelsea Hutchison Foundation
http://doctorsofsarasota.com/
http://gofiveguys.com/menu/sarasota-university-park/
http://purmort.com/
http://us.cyberonics.com/en/vns-therapy/
http://www.cyberonics.com/?referer=us
http://www.emfit.com/
http://www.h20america.com/
http://www.halleyimages.com/
http://www.hawcpa.com/
http://www.portfoliostrategygroup.com/
http://www.smart-monitor.com/
http://www.smart-monitor.com/
http://www.thesodagroup.com/
http://www.wealthenjoyment.com/
John Cannon Homes
SRQ
The Giving Partner

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